Materials for Health Care Providers

Comprehensive Care for Children and Adolescents with Sickle Cell Disease

Routine Health Care Maintenance of Pediatric Patients with Sickle Cell Disease

Handouts for Families and Schools

Acute Chest Syndrome (English)

(click here for the Spanish version)

Aplastic Crisis (English)

(click here for the Spanish version)

Infection and Fever (English)

(click here for the Spanish version)

Vaso-Occlusive Pain (English)

(click here for the Spanish version)

Priapism (English)

(click here for the Spanish version)

Spleen and Splenic Sequestration (English)

(click here for the Spanish version)

Stroke (CVA) (English)

(click here for the Spanish version)

A Parents' Guide to Sickle Cell Anemia (Hb SS) in Infants and Young Children (English)

(click here for the Spanish version)

A Parents' Guide to Sickle Cell Anemia (Hb SS) in School Age Children and Adolescents (English)

(click here for the Spanish version)

Sickle-C Disease (Hb SC) (English)

not available in Spanish 

Sickle Beta Plus Thalassemia Disease (Hb S-beta+ thal) (English)

(click here for the Spanish version)

Sickle Beta Zero Thalassemia Disease (Hb S-beta 0 thal) (English)

(click here for the Spanish version)

Psychosocial Guidelines

          Psychosocial Evaluation Tool

Materials for School Nurses and Teachers

A Guide to Sickle Cell Disease for the Educator

Sickle Cell Disease in the Educational Setting: School Nurse Perspective

School Planning and Accommodations Form

Back to School Conference Handout 2010

Links to Other Sources of Educational Materials on Sickle Cell Disease

Children's Hospital Oakland Book for Parents of 6-18 Year Olds with SCD

New Jersey Health Department SCD Information for School Personnel

New Jersey Health Department SCD Family Guide

NHLBI Management of Sickle Cell Disease   (direct pdf download)

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