About Us
The
Consortium:
*
Formulates standardized Clinical Practice Guidelines.
* Discusses Clinical problems and management issues.
* Prepares educational materials, media tools and conferences for families and patients.
* Provides a forum for the presentation and discussion of relevant research.
* Collaborates on clinical research projects.
* Represents the provider community to federal, state and local governments.
* Advocates through relationships with community organizations.
* Discusses Clinical problems and management issues.
* Prepares educational materials, media tools and conferences for families and patients.
* Provides a forum for the presentation and discussion of relevant research.
* Collaborates on clinical research projects.
* Represents the provider community to federal, state and local governments.
* Advocates through relationships with community organizations.
Membership
Membership to NEPSCC is open to anyone
involved in the care of patients with sickle cell disease including,
but is not restricted to, physicians, nurses, social workers, child
life specialists, and psychologists. There is no charge for membership.
Contacts
Physicians:
Dr. Philipa Sprinz M.D., MSc.
Boston Medical Center -- Chief Pediatric Hematology
E-Mail: Philippa.Sprinz@bmc.org
Staff:
Maria Champigny LCSW
Boston Medical Center -- Pediatric Social Work
E-Mail: Maria.Champigny@bmc.org
Justin Henneman M.S.
Boston Medical Center -- Webmaster
Hofstra North Shore - LIJ School of Medicine - Medical Student
E-Mail: justin.henneman@gmail.com